Please note information from these sites should to be used at the discretion of the health professional as they are not endorsed by OZC. However, in these challenging times it is felt appropriate to share to avoid unnecessary duplication of effort.
Resources developed by other practitioners/organisations
- My Therappy is an NHS information database that contains recommended Apps to support physical and mental health
- WFNR The World Federation for NeuroRehabilitation (WFNR) is a multidisciplinary organisation open to any professional with an interest in neurological rehabilitation. The organisation exists to act as a forum of communication between those with an interest in the subject.
- UKABIF The United Kingdom Acquired Brain Injury Forum, which aims to promote better understanding of all aspects of acquired brain injury. Have been proactive in campaigns such as the All-Party Parliamentary Group (APPG) for ABI.
- The Brain Injury Group is a network of specialist brain injury solicitors and other professional services providing support for people with brain injury and their families. Includes a directory of charities and support groups
- British Association of Brain Injury Case Managers (BABICM) professional association of case managers working with people with acquired brain injury and other complex conditions
- The Neurological Alliance is a coalition of 80 organisations working together to improve rehabilitation for people with a range of neurological conditions
- Krysalis Consultancy provides occupational therapy to people with neurological conditions nationwide, including resources for professionals. They have collated activity resources for people to complete at home, which they are kindly sharing with others at this time.
- Bridges Self Management Co-produced resources to support people who are living with stroke acquired brain injury and other neurological conditions.
Resources Suitable for Patients/Carers to Access
Third sector organisations in the UK have developed a lot of useful resources, both for clinicians new to the area as well as people living with the condition. Many of these have additional information about coronavirus.
There are a number of ‘vlogs’ and ‘blogs’ online developed by people living with experience of acquired brain injury. These forums can be an excellent source of support and advice, but content is unregulated and information contained within them is most likely based upon personal experience rather than scientific evidence. Therefore people should be advised to discuss anything they may read with their personal clinician to ascertain its relevance for them.
Organisations that provide information and support for people experiencing disability
- Carers UK is a resource for carers across the UK full of helpful advice and information about a range of topics associated with caring for someone with an illness or disability e.g. practical support, financial information, housing etc.
- NHS website contains information about various medical conditions and maintaining a healthy lifestyle, including dietary advice, exercise, sleep and mental health
- Government Website offers advice from government about benefits and making an application, e.g. Universal Credit
- Citizens Advice Bureau
- The Disabled Living Foundation is a national charity providing impartial advice, information and training on equipment for independent living
- MIND is a national charity supporting mental health
- AbilityNet is an organisation to help people make best use of assistive technology
- RNIB is for people who experience loss of vision
- Action for Hearing Loss is for people who experience hearing loss
- Fifth Sense is for people who experience a loss of sense of taste and smell
- Diabetes Society offers advice for people with diabetes and associated neuropathy
- The Tavistock Trust for Aphasia has great links to useful organisations around the world that offer advice and support for people with aphasia
Resources & organisations to support and share Evidence-based Practice
- Cochrane Library Worldwide organisation that gathers and summarises evidence from research to support health professionals to make informed decisions in their practice
- NICE Evidence and guidance from the National Institute for Health & Care Excellence
- Center for Outcome Measurement in Brain Injury (COMBI), an American online resource for those needing detailed information and support in regards to outcome measures for brain injuries.
- NHSE Information to support provision of rehabilitation for people with highly complex needs
- NHSE has produced guidance on a range of neurological conditions
- BSRM specialised neurorehabilitation guidance provided by the British Society of Rehabilitation Medicine
- Patient Information Forum organisation to support development of high quality accessible patient information
Although we take every care only to provide the very best resources to our clients and families, we cannot take any responsibility for any difficulties stemming from the use of any of the websites, materials, apps, software etc. offered by third parties. Sometimes links or resources become dated and although we do our best to keep checking that information on these pages are accurate and up to date, we rely on our clients and families to:
- Let us know if anything is out of date or unhelpful
- Make us aware of additional resources not yet listed here
Please therefore feel free to get in touch via our contact form (see bottom of page) to let us know more about any other resources clients and families like you may benefit from.